Monday, November 4, 2013

Surgery Postponed

You can tell I'm an iPhone newbie because my finger is always over the camera.

We received a phone call on Saturday evening saying that Julia had tested positive for rhinovirus, a common cold.  On Sunday, the surgeon confirmed that he was postponing the surgery until December 10.  This was shattering, truly.  I cannot believe how many hurdles we have faced this year.  Especially after they examined her on Friday and found her in perfect health, with no symptoms of a cold.  They said that because the risk of pneumonia and difficulty extubating is increased so much in kids with viruses, and in kids with DS, that postponement is essential.

This is so hard for many reasons.  We have worked hard not to expose ourselves to any viruses.  I know, in fact, exactly where we got it: at the pediatrician's office, where we waited for less than 5 minutes in a waiting room full of sick people, for Natalie to get her flu shot in order to protect Julia.  The next day, Natalie was sick.  Oh, the irony.



I had no idea that postponement would be so long.  When we heard it would be 6 weeks until she could have the surgery, I wanted to crawl in to a hole.  Because in fact, that is what we will be doing until then.  And it is essentially what we have done for the last few weeks.  We haven't had any children at our house in months, and our only interactions with other kids have been outdoors.  We don't go to church and we don't put Natalie in the nursery.  Julia is with me nearly 100% of the time.  I continue to pump for her to gain antibodies.  We didn't do Halloween.


Well, we dressed up.



But, with lots of encouragement from so many of you, I've got my head up again.  The extended quarantine - especially during the Christmas season - is what I am least looking forward to.  I feel bad for Natalie, being stuck at home with mom.  But, we will get through it.  




5 comments:

  1. She's not stuck. She's with her mommy and daddy and sister and surrounded by love. Big ((HUGS)) to all of you and lots of prayers.

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  2. I know this quarantine period is SO very isolating and mind-numbing. We did not go to church for almost 5 months, constantly had to turn down lots of well-intended visitors, lived in a bubble. It made me crazy, but I had to keep telling myself, this is not how it always will be. This is just a period of time, that will soon pass. This time next year, you will be celebrating holidays with loved ones, your beautiful daughter will be passed around and adored, and you will be able to ENJOY her without fearing for her life.

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  3. You don't know me, but I know Taylor and his family. I love his family dearly and am in fervent prayer for you and your family. I am praying that building up her antibodies through this quarantined time will allow the recovery after surgery to go more smoothly. God has given you a mother's instinct and a love for your children that no will else can ever know. I pray you feel that same love from your heavenly Father, and know that he is proud of your dedication, love, and faith. I will continue to pray this prayer. I praise Him for going before you and loving you through this difficult time. Love and prayers from Bolivia!

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  4. Wow Christine. You genuinely may be one of the strongest people I know. Hang in there--your girls are so lucky to have such amazing parents in you and Taylor. I saw you were at Children's in Columbus--if you're ever back in the audiology department my cousin Ashley works there as an aide! Take care you guys, I'll be thinking of you often.

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  5. I'm so devastated for you guys but hopeful that God's timing is always perfect. I am praying for you this very minute, for encouragement, for new mercies everyday that you are confined to home. Thank you, thank you for sharing your honest feelings because it helps us all pray specifically for your needs. You and Taylor are amazing and I know God will bless this time even though it's so dang frustrating. Shooting love arrows your way!

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